Privacy Policy

REGENXBIO Inc. (“REGENXBIO”) considers the privacy and security of user information an important component of the services offered at its website, (the “Site”). The following information explains how REGENXBIO collects and uses information obtained from users in connection with services available at the Site (as further defined in our Terms & Conditions, the “Services”). By using the Site, you consent to the terms of this Privacy Policy.

Information Collected.

At your election, you may request (and REGENXBIO may provide) additional information about REGENXBIO or subscribe to various information Services (to the extent such Services are offered on the Site) concerning REGENXBIO’s products, services and business. When you do so, we may request that you provide certain information, including, for example, your name, company name, address, telephone number, email address, and certain additional information about your interest in REGENXBIO (collectively, “Submitted Data”).

When you visit the Site, web servers collect “Traffic Data” information (such as, for example, time and date, the address of the website from which you entered the Site) about your visit that is stored as anonymous, aggregate data and cannot be used to identify you. Collecting Traffic Data may entail the use of IP addresses or other numeric codes used to identify a computer.

Use of Information.

REGENXBIO uses Submitted Data to respond to your inquiries for additional information, and in providing additional information according to your preferences. Submitted Data may also be used to send you information about REGENXBIO and its products and services. REGENXBIO may also use Submitted Data or Traffic Data to track your activity solely within the Site so that we may, for example, better customize the Services that we provide to you and/or improve the Site generally for our users (the “Other Use”).  At your election at any time, you may choose to stop receiving future communications from REGENXBIO and stop REGENXBIO from using your Submitted Data or Traffic Data to track your activity within the Site (see “Opt-Out” section below).

REGENXBIO also uses “Traffic Data” to help diagnose problems with its server, analyze trends and administer the Site. Your IP address and other Traffic Data is not linked to personally identifiable information, but is used to gather broad demographic data and to monitor statistics to improve the Services.

Sharing of Information.

REGENXBIO will not share personally identifiable information with any third party for commercial purposes. REGENXBIO may, however, disclose personally identifiable data if (1) it is reasonably necessary to perform the Services or for the Other Use, (2) it has been authorized by you, (3) it is required to do so by law or (4) it has a good faith belief that such action is necessary to conform to applicable laws or comply with any legal, regulatory or similar requirement or investigation, to protect or defend the rights or property of REGENXBIO or another user or to enforce our Terms & Conditions.

REGENXBIO may transfer personally identifiable information to any successor to all or substantially all of its business or assets that concern the Services.


Information collected by REGENXBIO is stored in secure operating environments that are not made generally available to the public. Unfortunately, no data transmission over the Internet can be guaranteed to be 100% secure. As a result, REGENXBIO cannot ensure the security of any information you provide, and you do so at your own risk. Once REGENXBIO receives your transmission, it will make reasonable efforts to ensure its security on its systems.

Third Party Sites.

The Services may permit you to link to other websites on the Internet, and other websites may contain links to the Site. These other websites are not under REGENXBIO’s control. The privacy and security practices of websites linked to or from the Site are not covered by this Privacy Policy, and REGENXBIO is not responsible for the privacy or security practices or the content of such websites.


REGENXBIO also uses cookies. “Cookies” are pieces of information that a website transfers to your computer’s hard disk for record-keeping purposes. Cookies in and of themselves do not personally identify users, although they do identify a user’s computer. REGENXBIO generally uses cookies to determine which areas of the Site users have visited and to compare users’ experiences in using the Site so that it may better tailor the Site content for them. You may be able to set your web browser to refuse cookies.

Children’s Policy.

The Site content and Services are intended for adult users over the age of 18.  The Site is not designed to attract child users.  REGENXBIO is committed to protecting the privacy of children, and does not collect personally identifiable information from any person it actually knows is a child under the age of 13.


You may elect to avoid future communications from REGENXBIO by sending an email to


REGENXBIO reserves the right to change or update this Privacy Policy at any time by posting a notice at the Site. Information collected by the Services is subject to the Privacy Policy in effect at the time of use.


If you have any questions regarding this Privacy Policy or your dealings at this Site, please contact REGENXBIO at: REGENXBIO Inc., 9600 Blackwell Road, Suite 210, Rockville, MD 20850, Tel: 240-552-8181, Email: