Effective Date: March 29, 2019
Last Updated: November 22, 2023
This Policy also contains information about the choices and privacy rights you have with regard to the information we maintain about you, and how you can exercise those choices and rights.
Please review this Policy carefully and contact us using the information provided in the “Contact” section below if you have any questions or concerns.
“Cookies” are pieces of information that a website transfers to your computer’s hard disk for record-keeping purposes. Cookies are uniquely assigned to your browser and can only be read by a web server in the domain that issued the cookie to you. Cookies cannot be used to run programs or deliver viruses to your computer.
“REGENXBIO” “we” or “us” means REGENXBIO Inc. REGENXBIO is the data controller of the Personal Information collected under this Policy.
“Site” means the REGENXBIO website (www.regenxbio.com) or any other website that we operate and that links to this Policy.“Personal Information” means any information that relates to you directly or indirectly and can be used to identify you, in particular by reference to an identifier, location, or factors specific to the physical, physiological, genetic, economic, cultural or social identity.
Depending on how you interact with us, we may collect the following categories of Personal Information:
In addition to Personal Information, we may collect other information that alone cannot be generally used to identify you. For example, when you use the Site, we may collect your browser type, device type, and operating system information. If any of this information can be used to identify you because, for example, we link it to your Personal Information, we will treat such information as Personal Information.
We may collect this information in a variety of ways, including:
We may use Personal Data for any of the following purposes:
Provide Site functionality and fulfill your requests when we have a contractual relationship, your consent, or a legitimate interest.
Provide personalized services when we have your consent or a legitimate interest in providing you with information of interest to you.
Operate our clinical trials, assist in diagnosis and participate in market research.
Engage with you regarding our products or product candidates when we have a contractual relationship or a legitimate interest.
Operate our business in compliance with our legal obligations and fulfilling our legitimate interest in maintaining our business.
Evaluate employment applications, if you have submitted an application for employment at REGENXBIO
In addition, we may aggregate the Personal Information we maintain about you and individuals so that we have a data set that does not, and cannot be used to, identify any individual. When we aggregate Personal Information, we may use and disclose such aggregated data for any purpose.
In the event we wish to use your Personal Information for other purposes that are not listed above or make any other changes to the existing purposes, we will notify you by amending this Policy in accordance with the section “Changes” below.
We may share your Personal Information in the following circumstances:
Google Analytics: We use Google Analytics to analyze and improve the functionality of our Site. To learn how Google Analytics uses and processes cookies and other tracking technologies, please visit “How Google uses data when you use our partners’ sites or apps.” You can prevent Google's collection and processing of data by using the Google Ads Settings page or downloading and installing their browser plug-in (https://tools.google.com/dlpage/gaoptout).
Your Control of Cookies: Most web browsers automatically accept Cookies, but you can usually modify your browser setting to decline Cookies. If you choose to decline Cookies, you may not be able to fully utilize all features of this Site. You can delete Cookies files from your hard drive at any time.
We are committed to complying with this Policy and data protection laws, including those outside of the United States, that apply to our collection and use of your Personal Information. REGENXBIO is headquartered in the United States, and we recognize that the laws in the United States may be different and, in some cases, not as protective as the laws other countries, including those located in the European Economic Area. By providing us with your Personal Information and using our Site, you acknowledge that your Personal Information will be transferred and processed in the United States. If you would like to know more about how we protect your Personal Information, you can contact us using the information provided in the ”Contact” section below.
If you become aware that information maintains about you is inaccurate, incomplete, misleading, irrelevant or out of date, or if you would like to access, update or remove your information, you may contact us using the information provided in the “Contact” section below. The right to erase your Personal Information may be limited if your Personal Information was collected for research purposes.
We will attempt to provide the requested information or make requested changes or removals to the extent allowable by the laws applicable to us. Please note that some of the above rights are limited by applicable law, and we may have the right to collect, process and hold your information pursuant to our legal obligations.
We may require you to provide additional information necessary to confirm your identity before complying with any request you make to us.
You may elect to avoid future communications from REGENXBIO by clicking the unsubscribe link at the bottom of any marketing email or contacting us using the information provided in the “Contact” section below. Please note that even if you opt out of marketing communications, you may still receive administrative, legal, and other important communications from us.
REGENXBIO will keep your Personal Information for as long as necessary to fulfill the purposes for which it was collected, including any legal, professional, accounting or reporting requirements. To determine the appropriate retention period, we consider the amount, nature, and sensitivity of Personal Information, the potential risk of harm from unauthorized use or disclosure of your Personal Information, the purposes for which your Personal Information is processed, whether we can achieve those purposes through other means, and all applicable legal requirements.
Information collected by REGENXBIO is stored in secure operating environments designed to ensure your Personal Information in protected from unauthorized access, use, disclosure, alteration or destruction, in accordance with applicable laws and regulations. Unfortunately, electronic data storage or transmission over the Internet cannot be guaranteed to be 100% secure. As a result, REGENXBIO cannot ensure the security of any information you provide. We encourage you to take reasonable precautions to safeguard your Personal Information.
Our Site and other services may contain links to other websites on the Internet, and other websites may contain links to the Site. These third party websites are not under our control, and this Policy does not cover the privacy and security practices of those third party operators. REGENXBIO is not responsible for the privacy or security practices or the content of such websites. We recommend that you review the privacy practices of any third party website to which you submit your Personal Information.
The Site and our services are intended for adult users over the age of 16. The Site is not designed to attract child users. REGENXBIO is committed to protecting the privacy of children and does not collect Personal Information from any person it actually knows is a child under the age of 16.
If you are located in the European Economic Area and REGENXBIO maintains your Personal Information, you have the following additional rights under the GDPR with regard to your Personal Information:
These rights may be subject to certain exceptions provided in the GDPR.
Please note that if you decide to exercise some of your rights, we may be unable to provide you certain services, or you may not be able to use or take full advantage of the services we offer. We may charge you a reasonable fee if you request additional copies of your Personal Information or make other requests that are manifestly unfounded or excessive. If we are unable to honor your request, or if we determine to charge a fee, we will let you know why. For purposes of the GDPR, REGENXBIO is the data controller of the information collected under this Policy.
This Policy describes our practices over the last 12 months with respect to the categories of information we collect, the sources of that information, and how we disclosed it. We do not currently sell or share data with third parties for targeted advertising purposes.
Specifically, in the last 12 months, we have disclosed each category of your Personal Information as follows:
Category of Personal Information
Recipients To Whom Data is Disclosed for a Business or Commercial Purpose
Recipients to Whom Data is Sold or Shared
Not sold or shared
Internet and other electronic activity information
Not sold or shared
Non-precise geolocation data
Not sold or shared
Not sold or shared
Recruitment and professional information
Not sold or shared
Sensitive Personal Data
Not sold or shared
California Civil Code Section 1798.83 permits individual California residents to request certain information regarding our disclosure of certain categories of Personal Information to third parties for those third parties’ direct marketing purposes. To make such a request, please contact us using the information in the “Contact” section below. This request may be made no more than once per calendar year, and we reserve the right not to respond to requests submitted other than to the email or mailing addresses specified below.
In addition, California residents may have the following additional rights under the California Consumer Privacy Act:
To exercise your rights, contact us online at https://dsrregenxbio.ethicspoint.com and click the “Make a Report” button or call (844) 235-2091.
We will take steps to verify your identity before processing your request. We will not fulfill your request unless you have provided sufficient information for us to reasonably verify you are the individual about whom we collected Personal Information. We will only use the Personal Information provided in the verification process to verify your identity or authority to make a request and to track and document request responses unless you initially provided the information for another purpose.
You may use an authorized agent to submit a request. When we verify your agent’s request, we may verify your identity and request a signed document from your agent that authorizes your agent to make the request on your behalf. To protect your Personal Information, we reserve the right to deny a request from an agent that does not submit proof that they have been authorized by you to act on their behalf.
9804 Medical Center Drive
Rockville, MD 20850
Tel: (240) 552-8181